Tuesday, January 10, 2017

"R" Is For Reflux

Little Fox has been battling reflux from very early on. I have friends who tell me that they have friends who have "reflux babies" and that it is an easy fix once meds are on board.

While for many that may be true, there are those of us whose babies battle reflux, silent reflux and even Sandifer Syndrome and haven't found that "magical cure" yet.

The past few days have been exceptionally brutal. In fact, I brought him in to the pediatrician and we discussed upping his dosage due to his weight and growth and I was hopeful we would have relief. The pediatrician we saw was not his normal doctor as she was booked so we were scheduled with another doctor in the practice.

He did an exam, agreed to increase the dosage, told us to give it time to see a difference, and sent us on our way. My husband went and picked the newly prescribed medication up and brought it home.

The dosage had been DECREASED.

So here I am, yet another day/night of listening to and watching my baby boy suffer. At times, especially during and after feeds, he becomes inconsolable.
We both need sleep here!
He screams.
He arches.
He gets seizure like tremors.
He vomits.
He is restless.
He wakes easily.
He postures.
He pulls back from feeds.
His eyes roll.
He's gassy.
He has sour breath.
He chokes and gags...

The list goes on.

If your little one is struggling with reflux, research and educate yourself. I'm currently learning about MARCI dosing and other feed thickening options.

Most importantly, breathe. Breathe through the sleepless nights and the endless mugs of cold coffees.

Breathe through the never-ending loads of vomit soaked burp cloths, bibs, blankets, and clothes (baby's and yours!)

Breathe through the days you don't get a shower and barely get time to pee.
No shower, no make-up, no sleep.
Just breathe...

Breathe through arms that are sore from rocking and dinners that have gone cold.

Because as hard as it is for us, it is hard for our little ones, too.

So just breathe, and rock that baby longer....